To keep everyone up on my health, I will start at the beginning, No I am just kidding. At the time I am waiting to get a Petscan, cervical MRI, Spine MRI, Mamogram reading, and see a therapist about the lympaderma in my arm. I am feeling good and positive. The chemo put me into early menopause. I thought I went through it a year ago when I started the drugs, no now that I am off the big drugs I am going through it, Hot flashes, Wow no fun. I've heard of some funny stories, I have none. I don't feel like myself, but I have to say I am truely happy. I love my family so much and have the best of friends. I've been busy the past two weeks, Jack started Kindergarten. Alex is moving to Skokie. I will take Alex to his new home on Sept. 1st.
Thank you for all your prayers. they must be working.
Saturday, August 29, 2009
Friday, June 19, 2009
It's been too long
I am so sorry I haven't written in such a long time. When I signed on I couldn't remember Tara's code and couldn't believe how long its actually been. I have been busy.
I went to my parents up North for 2 weeks, not at the same time. Mark wouldn't have liked that. I had a garage sale, never again. I went to have my port flushed and it was clotted, I go now every 4 weeks instead of 6weeks. I took Jack to Wilderness Lodge in Wisconsin Dells and also Key Lime Cove, both times giving me a rash on the backs of my legs by the knee. (possible allergy to the high chlorine content) I haven't been on Chemo since my last posting. I just take some oral medicine. No side effects so far. I was tested to see about mutation and possible lesions in my other breast. I just got the results and I have no Mutation. Yeah..... I went into the Dr. office about 2 weeks ago cause I was getting dizzy spells and not good on my feet, turns out I was dehydrated. At this time I am battling a itchy rash from head to toe (literally). I had strep throat and had a reaction to it because my immunity is so low. Doctor said it will run its course which is about 3 months. It's awful and ugly!!! I was told to rub banana peel on my body, it helps heal. I ended up with 2 dogs and 2 cats in bed with me, guess I smelled really good. Just joking, no cats. The dogs always sleep with me if Mark doesn't shoo them off. I was put on another drug Thurs. I tested high for some hormone and they want this drug (can't remember name) to help warn off any possible cancer cells . My hair coming in, slowly. It's gray and curly.
I bought my first prosthetic to the tune of $300. Ouch. I will have one and eventually get another. It's not like I have to worry about it growing back, Ha ha.
My cousins and I went today and got pedicures and manicures. It was fun and I feel good. My body and head are not me but my hands and feet look pretty good. In the past several months I have learned how truly nice people can be. I have the best friends and family in the world. I am so lucky!!!! I really want to thank everyone for the flowers, dinners, babysitting, driving Miss Cathy all over the state, cards, and especially the thoughts and prayers. Thank you again, I love you all.
I went to my parents up North for 2 weeks, not at the same time. Mark wouldn't have liked that. I had a garage sale, never again. I went to have my port flushed and it was clotted, I go now every 4 weeks instead of 6weeks. I took Jack to Wilderness Lodge in Wisconsin Dells and also Key Lime Cove, both times giving me a rash on the backs of my legs by the knee. (possible allergy to the high chlorine content) I haven't been on Chemo since my last posting. I just take some oral medicine. No side effects so far. I was tested to see about mutation and possible lesions in my other breast. I just got the results and I have no Mutation. Yeah..... I went into the Dr. office about 2 weeks ago cause I was getting dizzy spells and not good on my feet, turns out I was dehydrated. At this time I am battling a itchy rash from head to toe (literally). I had strep throat and had a reaction to it because my immunity is so low. Doctor said it will run its course which is about 3 months. It's awful and ugly!!! I was told to rub banana peel on my body, it helps heal. I ended up with 2 dogs and 2 cats in bed with me, guess I smelled really good. Just joking, no cats. The dogs always sleep with me if Mark doesn't shoo them off. I was put on another drug Thurs. I tested high for some hormone and they want this drug (can't remember name) to help warn off any possible cancer cells . My hair coming in, slowly. It's gray and curly.
I bought my first prosthetic to the tune of $300. Ouch. I will have one and eventually get another. It's not like I have to worry about it growing back, Ha ha.
My cousins and I went today and got pedicures and manicures. It was fun and I feel good. My body and head are not me but my hands and feet look pretty good. In the past several months I have learned how truly nice people can be. I have the best friends and family in the world. I am so lucky!!!! I really want to thank everyone for the flowers, dinners, babysitting, driving Miss Cathy all over the state, cards, and especially the thoughts and prayers. Thank you again, I love you all.
Sunday, April 5, 2009
Off Chemo
I went to the Dr. for chemo and he suggested since lately everything looks good to go on a hiatus for 1 month. Too much chemo could cause leukemia anyway. It will be nice to maybe feel normal on Easter. Actually I've been felling good lately, I even attempted to clean the basement. haha. I hope everyone has a wonderful Easter. I am looking for to seeing the whole family and having a nice brunch.
Saturday, March 28, 2009
March 28, 2009
Well my test came back negative. Which is great but I still have blood in my urine. We think it might be from a UTI I have. It could also have been from a stone I passed. What a nice subject Huh? Pretty embarrassing actually. I feel good. No more backaches, hardly any headaches, no migraines, I hope I'm not jinxing myself. My next appointment is Thurs for chemo and Fri to see Dr. A and check the blood situation.
I'm going out on the town tonight. Marks or as the music industry calls him, Skeeter, his band is playing tonight at Sundance Saloon. I plan to party hard. I'll probably be ready to sleep at 9:00 when the band starts. Its pretty funny to watch me dance. I've always loved to dance and now I don't quite have my balance and a couple times I almost landed on my butt but caught myself.
Someone should come with a camera. We could win 10,000. on home videos. Never know what could happen if I have a drink and dance. Just joking, if it gets bad I won't get off my chair.
I can't remember if I asked this or not, but does anyone know a yellow or chocolate AKC lab looking for a relationship with my Black Betty?
Well time to go play Candy Land with Jack. Again.
Spring is on it's way, yahoo.
I'm going out on the town tonight. Marks or as the music industry calls him, Skeeter, his band is playing tonight at Sundance Saloon. I plan to party hard. I'll probably be ready to sleep at 9:00 when the band starts. Its pretty funny to watch me dance. I've always loved to dance and now I don't quite have my balance and a couple times I almost landed on my butt but caught myself.
Someone should come with a camera. We could win 10,000. on home videos. Never know what could happen if I have a drink and dance. Just joking, if it gets bad I won't get off my chair.
I can't remember if I asked this or not, but does anyone know a yellow or chocolate AKC lab looking for a relationship with my Black Betty?
Well time to go play Candy Land with Jack. Again.
Spring is on it's way, yahoo.
Thursday, March 19, 2009
March 19, 2009
Well for the last 2 months I've been working on getting a referral from my primary to see my Brain Specialist, Nina. As anyone knows who has HMO you have to jump through hoops. I finally got an answer from my Dr. No. I had two appointments on Tuesday, 1 with Nina; and the other with a genetic specialist who wants to check my chance of having cancer in the other breast. He said No to both. My husband got on the phone and asked why were we given the OK twice before and now we can't. He changed his mind and we were ok'd to go to the 1 appointment.
At the appointment Nina explained she was unable to view my scans, which I sent her overnight mail 2 months ago. Her institution won't allow her to view scans from other institution's. However, she was allowed to read the report. She said the report explains how nothing was visible but she couldn't understand that as they ( the other Dr's) had nothing to compare it to.
She asked to see me in May and at that time have MRI's done at her Hospital (Northshore Evanston). So in other words the appointment was a waste. Dr. A. my primary Dr. wanted to see me before I pursue more tests. I just saw him 1 month ago. I had an appointment today.
He claims he never heard of a Dr. unable to read other hospitals scans. I told him I will have Dr. Nina call him. He approved my appointment with the Genetics Dr. While I was there I was experiencing more back pain and leg pain. It was hurting pretty good, it hurt to sit and stand, I couldn't get comfortable. He became concerned and did a urinalysis. I had blood. He then grew more concerned and did a blood test to check for Bone Cancer, or Kidney Stones. I should have results Sat. I have another appointment on Monday. I told him I had plans and was going out of town and he told me to cancel them. If the test shows anything he will do a bone scan.
I've had stones before. Of course I was 8 months pregnant at the time. They are painful. They couldn't do much for the pain because of the baby. I'm hoping it's just that I over did it with the nice weather the past few days. I will keep you posted. I now have to play chutes and ladders.
At the appointment Nina explained she was unable to view my scans, which I sent her overnight mail 2 months ago. Her institution won't allow her to view scans from other institution's. However, she was allowed to read the report. She said the report explains how nothing was visible but she couldn't understand that as they ( the other Dr's) had nothing to compare it to.
She asked to see me in May and at that time have MRI's done at her Hospital (Northshore Evanston). So in other words the appointment was a waste. Dr. A. my primary Dr. wanted to see me before I pursue more tests. I just saw him 1 month ago. I had an appointment today.
He claims he never heard of a Dr. unable to read other hospitals scans. I told him I will have Dr. Nina call him. He approved my appointment with the Genetics Dr. While I was there I was experiencing more back pain and leg pain. It was hurting pretty good, it hurt to sit and stand, I couldn't get comfortable. He became concerned and did a urinalysis. I had blood. He then grew more concerned and did a blood test to check for Bone Cancer, or Kidney Stones. I should have results Sat. I have another appointment on Monday. I told him I had plans and was going out of town and he told me to cancel them. If the test shows anything he will do a bone scan.
I've had stones before. Of course I was 8 months pregnant at the time. They are painful. They couldn't do much for the pain because of the baby. I'm hoping it's just that I over did it with the nice weather the past few days. I will keep you posted. I now have to play chutes and ladders.
Thursday, March 12, 2009
3-12-09
Jack is 5 years old, oh boy. He is so excited, he feels he is now a big boy.
I went to my oncologist and I did have chemo and the shot I love so much that raises my blood levels. Dr. R said the lesion they see in the Petscan could be the herniated disc but it is not for sure. He is referring my scans to another Dr. He also looked at the swelling on my arm and wrist and said it could be a blood clot...... We hope it may just be Lympoderma, something with the lymph nodes that were removed. He is ordering a device I put on at night to relieve the pain and swelling before were look further. Hymp... I'm off chemo for 2 weeks so hopefully we'll have all the results by then.
My hair is coming in. I've heard how nice its suppose to come in after chemo. Get this, mine is black in back, straight, black/silver on sides, curly, top patch 6" x 2" bald. I lost only 1/2 of my eyebrows, I cannot draw on eyebrows. On the bright side I lost 8 lbs.
Well dinner was just delivered so I better go eat. Wish for Spring, I'm not used to going out with no hair its' so cold.
Sincerely-Cath
I went to my oncologist and I did have chemo and the shot I love so much that raises my blood levels. Dr. R said the lesion they see in the Petscan could be the herniated disc but it is not for sure. He is referring my scans to another Dr. He also looked at the swelling on my arm and wrist and said it could be a blood clot...... We hope it may just be Lympoderma, something with the lymph nodes that were removed. He is ordering a device I put on at night to relieve the pain and swelling before were look further. Hymp... I'm off chemo for 2 weeks so hopefully we'll have all the results by then.
My hair is coming in. I've heard how nice its suppose to come in after chemo. Get this, mine is black in back, straight, black/silver on sides, curly, top patch 6" x 2" bald. I lost only 1/2 of my eyebrows, I cannot draw on eyebrows. On the bright side I lost 8 lbs.
Well dinner was just delivered so I better go eat. Wish for Spring, I'm not used to going out with no hair its' so cold.
Sincerely-Cath
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