Caring for Cathy

Happy Valentines Day 2012

2012-02-11T14:10:00.003-06:00

I can't believe it's already February. I've been feeling pretty good other than the stomach aches. They are usually a warning sign that I will be getting sick soon. I saw my oncologist and things look good. My headaches could be caused from the herniated disc at the top my spine.

I went to my optometrist to upgrade my glasses. She did a bunch of tests on my eyes and found my left eye to have some abnormal shadows. I have an appointment next week to see a specialist. There's a round circle behind the cornea and a bunch a little shadows scattered around near the nerves. I talked to my aunt and was told my uncle actually just had surgery on his eye for cancer. The surgery went well other than leaving his eyelid limp. He had to go back and have surgery on the eye lid. He's doing good. I think what they are looking for on me is either cancer or diabetes. I will keep you informed.

Jack and I are dealing with colds today. Jack is so funny, he hates his nose running and having to keep blowing it. He wadded up some tissue, put it up to his nose and taped it on his face. I wish I had a camera, he looks so silly. Unfortunately, I think I got my cold front him. He would sneakingly slide into bed next to me at night.

We are looking forward to next weekend where we will be up north visiting my parents. I have signed up for the relay of life. I will be walking for cancer in June. If anybody wants to sponsor me or join the team, you can go to relay for life.com caring for Cathy. I'm pretty sure this is what you need to do. If not, let me know.

Well I need to go check on my little man. I will keep you updated on my condition. Again, I would like to thank everyone for the prayers. I appreciate everything and take nothing for granted. Nikki Nolte thank you for calling me every day and checking up on me. You are a great friend and I cherish our friendship. Jen Klick, thank you for being such a good friend. I like getting together with you and doing crafts. I just wish we lived closer. All right again soon, thanks again everybody. Love, Cathy

I wish I knew.......

2012-01-19T13:20:00.001-06:00

Somedays I feel so good, I find myself laughing for no reason. Otherdays, I feel very, very tired. I started to think about what happens when you've reached the last days of life. Don't get me wrong I will never give up, was just wondering.

Happy New Year 2012

2012-01-11T19:03:00.002-06:00

Wow, I can't believe it's been 1 1/2 years since I've written. I guess I have a lot of catching up to do. I guess the best way to write this would be to start from the beginning.

I was diagnosed with cancer in May 1st of 2008. The cancer was located in my left breast, 11 lymph nodes, my spine, and my brain. I was considered stage four with aggressive cancer. I had radiation for as long as the doctors would let me. Then I was put on chemo, which I am still on. The only difference is I am no longer on liquid chemo where I have to be in the office to receive it three times a week. I take a chemo pill three times in the morning and three times at night. It basically has the same side effects as the liquid.

The doctors removed my breast, and all my lymph nodes. They are unable to remove any lesions in the brain as there are too many. They are unable to remove the lesion in my spine, which is in my fourth or fifth vertebrae. If they attempted to remove the lesions in my spine I could very possibly become a paraplegic. Later on, I was diagnosed with cancer in my liver. Since then it has disappeared. So at this time, I have no cancer in my breast, lymph nodes, or my liver. The two cancers, brain and spine, will probably never go away completely. I have to keep taking x-rays to make sure the cancer is not spreading or getting bigger. I have been lucky as they seem to be not getting any worse. I was then diagnosed with a herniated disc near the lesion in my spine. This causes me to have headaches. Excedrin seems to help.

As far as the medications I am on, I do have different side effects. To me they are minor as they seem to be working. I will do whatever it takes to be with my family and friends. I will not give up. As far as the symptoms, I have lost a lot hearing, eyesight, balance, and I'm still a little bald. I do suffer from exhaustion and tend to get tired easily. If I get a burst of energy I use it to my fullest advantage. I do get stomach cramps and nausea. My husband, Mark, does do the cooking. He does however forget that my taste buds have changed. I cannot handle any hot spiced food, and have difficulty with just pepper.

As of right now I feel I'm at a standstill. I am on the same medication and see my doctor once a month, he checks all my levels and my reaction to the meds. Every six months, I either have a mammogram (half off, get it? ), MRIs, or pet scans. I totally trust my doctor and his PA. My doctors claim I'm a miracle. The mastistic cancer and stage I was diagnosed with made them feel I pretty much was a lost cause. My doctor confessed to me he didn't think I would have become a survivor this long. But, I'll never forgot he told me we had lots of options. He claims there had to be intervention. I know that intervention he is talking about is with the Lord Jesus Christ. I know I need to think my family, friends, and their friends, and even strangers, and their friends, for all the prayers they have sent my way. Thak you all!!!

Overall, I have to say this is not an easy journey, because I think about it every day. I try not to worry, as the load I carry is not so heavy with Jesus Christ by my side. I look on the brighter side everyday and tell myself it could've been worse. I will try to keep up my blog and keep you, my friends, updated.

As of right now, I still deal wth the symthoms everyday, never knowing which one will present itself. I do like surprises, lol. I take my meds, eat right, get rest, and try to live each day to the fullest.

I want to wish everyone a happy, healthy, wonderful New Year.
I love you all,

Cath

Summer is almost over

2010-08-26T18:29:00.002-05:00

Well the tests came back. I have another lesion in my liver. I am back on the chemo, unfortunately with the side effects slowing me down. I have hand and feet syndrome where my hands and feet get red and very sore. I am unable to walk. I also get nauseous a lot more often. Because of the side effects, I have to go off the chemo for 3-5 days and then start over. The Dr. would like me to be on the meds for 2 weeks straight and then off 1 week. I'm lucky if I make it 5 days in a row.
I have been very busy this summer. I went to Ct. to visit my friend Alice. My cousin Carrie went with me. We had so much fun. I visited New York, it was wonderful, and surprising to many of my friends. the people were very friendly. In 3 weeks I will be joining my cousins, Vicki and Sue, for a trip to Hawaii. Vicki has time share she needs to use or loose. We can't let that happen now can we.
Jack started 1st grade. Its been difficult so far, he cries for mom. It just breaks my heart.
Ok, Friends and family, I need more prayers . 1st my son, Alex. I want him to change the facility he resides at. I am not happy with them. I cry when I see Alex, he looks so skinny. He shakes constantly. They don't return my calls. I want him out. Unfortunately, he is ready to leave but there are no facilities with openings. I would like him to be a resident of Clearbrook.
2nd, my friend and neighbor was surprised to be diagnosed with breast cancer 3 weeks ago. She is getting ready to begin treatment. Unfortunately, she was diagnosed yesterday with lung cancer. She is very scared. I want her to know her faith can carry her through the difficult days. Once she accepts the disease she will find it easier to cope. She needs to believe and be positive. She is only 30. Please pray for her to get the guidance she needs to believe she can beat this. I also pray that her family gives her the hope and care she will need during the coming months. I know all the prayers I've received from you all over the years has got me through some of the worse days and I thank you.
Enjoy the last month or so of summer and enjoy fall.
Love you all, Cathy

July 2010

2010-07-05T20:06:00.002-05:00

Happy Summer Everyone
I am doing OK. I joined a new church and I am very excited about it. I am on the Chemo for the cancer in my Liver. It has alot more side effects than the IV. I am on it for 2 weeks and off 1 week. The week I am off the chemo I still feel the effects. To me, I feel, that means it has to be working or I wouldn't feel anything. I will have a cat scan on Thursday of this week to see if the meds are working or we need to switch to something else. Doctors say we have lots of options, so that's promising. I have been so busy this summer, I can't believe its July already. Jack and I haven't even been to the pool yet. He will begin school in one month, 1st grade. I will keep everyone posted.

March 31, 2010

2010-03-31T17:31:00.002-05:00

Well, Mark and I just got home from a visit to my parents home up north. They kept Jack for an extra day and will bring him home on Friday. He loves it up there. I am going to enjoy the quiet at some point. We got home about 2 hours ago and I already picked up the land mines in the yard, painted 1/2 the shed and now I am doing laundry. I can't seem to stop. I will see the Dr. tomorrow afternoon. My glucose levels are all over the place. I will have a pet scan because some other levels are up there. (I can't remember which ones) They also something is in my hip. We are not too concerned as I have no symthoms or pains. I guess I am a candidate for hip surgery. Oh well we'll worry about that another day. Overall I feel pretty good. I appreciate all the prayers. But could I ask for a favor. Could you please pray for Alex. I had a hard time taking him home on Sunday. He cried like I never saw him cry. It broke my heart. I have been unable to cry since my diagnosis and yet when I left Alex's I cried like a baby all the way home. He didn't want me to leave and kept saying mama. omg was it hard. Thank you all. Hugs and Kisses, Cath

March 16, 2010

2010-03-16T20:57:00.003-05:00

Well I had another blood test. Results show my cholestrol is still high so I am still on medicine. My gluclose was high so they sent me home with a diabetes blood check kit. I test it everyday and it's still high. My mamo was good. My numbness in my right side and back is back. The cat scan showed nothing. I also had 4 MRI's, 3 were good, 1 showed my herniated disk in the top part of my spine is worse. I also have another lesion. That's about it. I feel great. The lympadema in my left arm is better and I hardly ever wear my sleeve. I will talk to the Dr this week and find out what they have in store for me. I've been busy with Jack. He just turned 6and is playing soccer. I'm looking forward to spring. Thank you for the prayers.
Cathy

February 2010

2010-02-06T15:40:00.002-06:00

Tuesday I went to my GP and had blood drawn for several tests. On Friday, I went for my physical. I have high cholesterol so I'm on medication. In 4 week I will go back and get it drawn again and they will check my liver (?). The MRI test looked ok to him. He didn't say good but he didn't say bad either. I'm stable.
As a person who believes so much in prayer I was hoping I could ask for another favor. Could you pray for my son Alex. He was placed into an adult facility in Skokie on Sept. 1st. He had issues with other residents and was placed in a different home, in Skokie. Only about 10 days later he was moved again and is living in a different home in Des Plaines. Alex needs things to be routine. He is not having much time to settle in and he is moved again. Please pray that Alex settles down, relaxes, and accepts his new home as much as he loved RocVale. I really need him to be happy. Your prayers worked for me, I pray they will help Alex. Love you all, Cath

I'M STABLE

2010-01-29T14:26:00.003-06:00

I had a MRI on Wednesday, and the results came in today. I have not talked to the Dr. yet but did have them fax me a copy of the report. To me, it basically says they are focusing on the cerebellum and right tonsil which is very vague in enhancement. There are no new lesions and the ones I have are not growing. It says I'm stable. I'm OK with that. I know they will never disappear so if they just stay the same that's ok. Now if you ask my husband if I'm stable, he may question that. I go in 2 weeks for a physical exam and blood work for any other cancers. If that's good I may go for Reconstruction. And baby, I will not waste the Dr. time on little ones, I want them BIG!!!! No I'm only joking I don't want to hurt my back now. I don't know what I'm gonna do. Thanks again for the prayers. Love you all. Cath

My Children

2010-01-01T14:25:00.004-06:00

December 28, 2009

2009-12-29T20:11:00.002-06:00

I hope everyone had a wonderful Christmas. I sure did. My children were over Christmas Eve, spent the night and we all woke up together about 8:30 for Christmas morning. Christmas, I went to my brothers home where some good friends showed up. My cousins were all there also. We have so much fun when we are together. I was feeling good but a little uncomfortable. I finally went to the PT and had some therapy and wrapping done on my arm. My arm was wrapped from my shoulder to my fingers. I never had a cast and feel sorry for anyone who has, talk about uncomfortable. The Lymphodema should eventually go down and the pain subside from my upper arm. I was fitted on Monday for a sleeve that goes from shoulder to my wrist and then I also have a glove that goes to my knuckles. They are called Compression sleeve and glove. I now do the therapy myself and can remove the wraps when I do dishes or take a shower. I see my Oncologist every 6 weeks for a port flush and check up. March I will have more MRI's done and the Dr's will look further into the abnormal sightings on my last tests to see if anything has changed. Hopefully what ever it was is gone. I totally lay my trust and faith in God's hands. Whatever happens will happen, all I can do is pray and take care of myself. I am confident I will be OK. My children need me, especially Jack who is 5 and Alex who is 22 and physically challenged.
I am happy, somewhat tired, but very happy. I hope everyone has a wonderful New Years. I also wish everyone a happy, healthy, and prosperous 2010!!! Cath

December 1st, 2009

2009-12-01T20:12:00.002-06:00

Well it's been a while. I forgot the password. I've been doing ok. Nothing bad just the same. Every 6 weeks I get my port flushed and blood work. Every 5-6 months I get tests and MRI's. Tuesday I start therapy for my arm. It's been a year and its still swollen and sore. The Dr. is fitting me a sleeve to help. I've been busy with the holidays and I am almost done with my shopping and will begin baking cookies. I hope everyone has a wonderful holiday season. I will talk more next visit. I am pretty tired tonight.

October 13

2009-10-12T19:10:00.002-05:00

Nothing is as good as the technology I am given and suppose to know how to work. I feel like a 2nd grader, really, when it comes to knowledge of the computer. Actually, 2nd graders know more then me. I have such problems getting on. Nothing is more frustrating then typing for 15 minutes then accidentally erasing it. Oh well.....now you know what I've been up to.
My Doctor found something in my female region but he isn't concerned at this point. He just thinks we need to keep an eye on it. Everything is stable nothing shrinking, but not getting bigger or spreading. I feel good. My hair is taking its time growing. The bangs, anyone who knows me, knows I always were bangs. Well they are not growing. I'm learning how to quilt and love it. I've been busy getting into a routine with Jack starting kindergarten and Alex moving from Rockford to Skokie. Jack and I workout 3 times a week, OK maybe 2 times on a good week, usually only once. I'm trying not to over due it, hahaha. I gained alot of weight with the meds I'm taking. That's my story and I'm sticking to it. I hope everyone is ready for winter, I am not. I am so sorry this update took so long to write. Forgive me.

September 4, 2009

2009-09-04T18:58:00.004-05:00

I'm baaaack. I know what your thinking, omg it has'nt even been a month. Just an update. My Mamo is negative. I had a petscan today from eyes to thighs. I'll get results in 2-3 days. I have been busy learning how to quilt, and loosing 10 lbs. Quilting is easier. Hope everyone is enjoying the rest of the summer, its going quick.

Aug. 30, 2009

2009-08-29T18:49:00.003-05:00

To keep everyone up on my health, I will start at the beginning, No I am just kidding. At the time I am waiting to get a Petscan, cervical MRI, Spine MRI, Mamogram reading, and see a therapist about the lympaderma in my arm. I am feeling good and positive. The chemo put me into early menopause. I thought I went through it a year ago when I started the drugs, no now that I am off the big drugs I am going through it, Hot flashes, Wow no fun. I've heard of some funny stories, I have none. I don't feel like myself, but I have to say I am truely happy. I love my family so much and have the best of friends. I've been busy the past two weeks, Jack started Kindergarten. Alex is moving to Skokie. I will take Alex to his new home on Sept. 1st.
Thank you for all your prayers. they must be working.

It's been too long

2009-06-19T20:05:00.002-05:00

I am so sorry I haven't written in such a long time. When I signed on I couldn't remember Tara's code and couldn't believe how long its actually been. I have been busy.
I went to my parents up North for 2 weeks, not at the same time. Mark wouldn't have liked that. I had a garage sale, never again. I went to have my port flushed and it was clotted, I go now every 4 weeks instead of 6weeks. I took Jack to Wilderness Lodge in Wisconsin Dells and also Key Lime Cove, both times giving me a rash on the backs of my legs by the knee. (possible allergy to the high chlorine content) I haven't been on Chemo since my last posting. I just take some oral medicine. No side effects so far. I was tested to see about mutation and possible lesions in my other breast. I just got the results and I have no Mutation. Yeah..... I went into the Dr. office about 2 weeks ago cause I was getting dizzy spells and not good on my feet, turns out I was dehydrated. At this time I am battling a itchy rash from head to toe (literally). I had strep throat and had a reaction to it because my immunity is so low. Doctor said it will run its course which is about 3 months. It's awful and ugly!!! I was told to rub banana peel on my body, it helps heal. I ended up with 2 dogs and 2 cats in bed with me, guess I smelled really good. Just joking, no cats. The dogs always sleep with me if Mark doesn't shoo them off. I was put on another drug Thurs. I tested high for some hormone and they want this drug (can't remember name) to help warn off any possible cancer cells . My hair coming in, slowly. It's gray and curly.
I bought my first prosthetic to the tune of $300. Ouch. I will have one and eventually get another. It's not like I have to worry about it growing back, Ha ha.
My cousins and I went today and got pedicures and manicures. It was fun and I feel good. My body and head are not me but my hands and feet look pretty good. In the past several months I have learned how truly nice people can be. I have the best friends and family in the world. I am so lucky!!!! I really want to thank everyone for the flowers, dinners, babysitting, driving Miss Cathy all over the state, cards, and especially the thoughts and prayers. Thank you again, I love you all.

Off Chemo

2009-04-05T12:32:00.002-05:00

I went to the Dr. for chemo and he suggested since lately everything looks good to go on a hiatus for 1 month. Too much chemo could cause leukemia anyway. It will be nice to maybe feel normal on Easter. Actually I've been felling good lately, I even attempted to clean the basement. haha. I hope everyone has a wonderful Easter. I am looking for to seeing the whole family and having a nice brunch.

March 28, 2009

2009-03-28T12:40:00.002-05:00

Well my test came back negative. Which is great but I still have blood in my urine. We think it might be from a UTI I have. It could also have been from a stone I passed. What a nice subject Huh? Pretty embarrassing actually. I feel good. No more backaches, hardly any headaches, no migraines, I hope I'm not jinxing myself. My next appointment is Thurs for chemo and Fri to see Dr. A and check the blood situation.
I'm going out on the town tonight. Marks or as the music industry calls him, Skeeter, his band is playing tonight at Sundance Saloon. I plan to party hard. I'll probably be ready to sleep at 9:00 when the band starts. Its pretty funny to watch me dance. I've always loved to dance and now I don't quite have my balance and a couple times I almost landed on my butt but caught myself.
Someone should come with a camera. We could win 10,000. on home videos. Never know what could happen if I have a drink and dance. Just joking, if it gets bad I won't get off my chair.
I can't remember if I asked this or not, but does anyone know a yellow or chocolate AKC lab looking for a relationship with my Black Betty?
Well time to go play Candy Land with Jack. Again.
Spring is on it's way, yahoo.

2009-03-19T18:06:00.001-05:00

March 19, 2009

2009-03-19T17:31:00.002-05:00

Well for the last 2 months I've been working on getting a referral from my primary to see my Brain Specialist, Nina. As anyone knows who has HMO you have to jump through hoops. I finally got an answer from my Dr. No. I had two appointments on Tuesday, 1 with Nina; and the other with a genetic specialist who wants to check my chance of having cancer in the other breast. He said No to both. My husband got on the phone and asked why were we given the OK twice before and now we can't. He changed his mind and we were ok'd to go to the 1 appointment.
At the appointment Nina explained she was unable to view my scans, which I sent her overnight mail 2 months ago. Her institution won't allow her to view scans from other institution's. However, she was allowed to read the report. She said the report explains how nothing was visible but she couldn't understand that as they ( the other Dr's) had nothing to compare it to.
She asked to see me in May and at that time have MRI's done at her Hospital (Northshore Evanston). So in other words the appointment was a waste. Dr. A. my primary Dr. wanted to see me before I pursue more tests. I just saw him 1 month ago. I had an appointment today.
He claims he never heard of a Dr. unable to read other hospitals scans. I told him I will have Dr. Nina call him. He approved my appointment with the Genetics Dr. While I was there I was experiencing more back pain and leg pain. It was hurting pretty good, it hurt to sit and stand, I couldn't get comfortable. He became concerned and did a urinalysis. I had blood. He then grew more concerned and did a blood test to check for Bone Cancer, or Kidney Stones. I should have results Sat. I have another appointment on Monday. I told him I had plans and was going out of town and he told me to cancel them. If the test shows anything he will do a bone scan.
I've had stones before. Of course I was 8 months pregnant at the time. They are painful. They couldn't do much for the pain because of the baby. I'm hoping it's just that I over did it with the nice weather the past few days. I will keep you posted. I now have to play chutes and ladders.

3-12-09

2009-03-12T16:36:00.002-05:00

Jack is 5 years old, oh boy. He is so excited, he feels he is now a big boy.
I went to my oncologist and I did have chemo and the shot I love so much that raises my blood levels. Dr. R said the lesion they see in the Petscan could be the herniated disc but it is not for sure. He is referring my scans to another Dr. He also looked at the swelling on my arm and wrist and said it could be a blood clot...... We hope it may just be Lympoderma, something with the lymph nodes that were removed. He is ordering a device I put on at night to relieve the pain and swelling before were look further. Hymp... I'm off chemo for 2 weeks so hopefully we'll have all the results by then.
My hair is coming in. I've heard how nice its suppose to come in after chemo. Get this, mine is black in back, straight, black/silver on sides, curly, top patch 6" x 2" bald. I lost only 1/2 of my eyebrows, I cannot draw on eyebrows. On the bright side I lost 8 lbs.
Well dinner was just delivered so I better go eat. Wish for Spring, I'm not used to going out with no hair its' so cold.
Sincerely-Cath

GOOD NEWS

2009-03-07T20:42:00.002-06:00

Hello everyone. The prayers are working and I appreciate it so much, thank you all. I went to my Dr. on Wed. and he claimed he saw no cancer and I was his miracle baby. He was surprised by the test results. I went to my Oncologist on Thursday and he was on vacation so I saw his assistant. She also claimed to see no cancer mentioned on the test reports. There was something though, its just the herniated disc, not cancer. I had the chemo and might or might not have it next week on Thursday. We will see what the Dr. says. It looks good, huh??? I will finally see the specialist on the 17th. By the 20th of this month I will find out how I stand on the treatments. I've been feeling pretty good and I am looking forward to Spring.

March Update

2009-03-02T21:04:00.002-06:00

I 've contacted my specialist in Evanston and so far havn't had no luck with talking to her about my MRI's taken a few weeks ago. I'm assuming that's good news. If it was bad I would think she would want to talk to me. I had a catscan and petscan done today. I see my general Dr. on Wed. and hopefully will get the results. They are checking my neck to my thighs for any sign of abnormality. They actually gave me an IV with radio active materials.
I went to a jewelry class yesterday and the teacher had breast cancer. She beat it only to now have cancer in her ribs and lungs. She caught a virus from a sick niece and now has vocal cord damage, she talks like shes got a cold, but doesn't. Shes been battling cancer for 14 years. She looks great and has alot of stamina.
My hair is coming in, except for the very top. It looks ridiculous. I think its coming in curly, gray and black. I can feather it back on the sides, its pretty funny. My niece wore her hair moussed and spiked, it looked so good on her. I'm thinking of going with that look I just hope I'm not too old for that style. Thanks for all the prayers, there working.

GOOD NEWS!

2009-02-12T15:39:00.002-06:00

I went to my surgeon on Tuesday and was told the pain could be from the herniated disc or the surgery. I have some swelling but the pain is getting worse. She is going to contact my Oncologist and get me therapy. I went to Oncologist today, my levels were OK. I have seen them real bad, this was bad but not that bad. So of course I had to get my bonus shot. Ouch. My Dr. also informed me that he will contact Dr. Nina and talk about the future. He didn't see any cancer on the report that he could read. He did a cell research and will have the results next Wed. If it looks good he will go forward on setting up a cat scan or pet scan. If that looks good I may be off Chemo. I hate to get too excited but it would so good to get off these chemicals.
My hair is coming in, silver and black, and get this I think curly. Its just fuzz now and bald on top. I'll keep you posted. Keep praying its working.

2009-02-09T20:00:00.003-06:00

Monday Feb. 2

2009-02-02T19:49:00.002-06:00

I met with my Dr. today to discuss my herniated disc. He said its pretty bad and wanted to put me on steroids but decided he couldn't do that because it will mess with my white blood cells and my cell count is almost nil as it is. He suggested we just hold on and hope it doesn't get worse and I can deal with the pain with medicine. He seems to think all this pain I have in my left arm is not from the surgery but from the herniated disc pushing on my spinal cord and the nerves. Also the hand sensations I get and thought was just arthritis is from the herniated disc. If I experience any new sensations I am suppose to call him. He hopes if I hold it off and it doesn't get worse I won't need any surgery. Thursday I have Chemo and next Tues. I meet with the Surgeon. I haven't heard from my specialist yet. Keep you posted. God Bless.

Sun. Feb. 1st

2009-01-21T18:11:00.002-06:00

I wrote on the blog a couple weeks ago and I see it didn't post, don't know why. I must of deleted it. I'm good at that I try to message Shaun on the phone and I accidentally delete it. I then quit it takes me too long. I don't know how the kids do it.
I am still getting my treatments and the shot for my levels on the second session. It hurts but I'm getting used to it. The needle doesn't hurt at all its when the medicine goes into my body. I did get 4 hours of MRI's taken on Friday. There was a mess up and my Doctor refused to give me a referral for my specialists MRI's, so we had to go to a clinic and have the CD and report sent to her. I asked the nurse why this now, she claimed it was the economy. I haven't heard from her or my Oncologist yet. I do however have an appointment with my GP Doctor, he called me because he found out that I have a herniated disc in my cervical spine (neck). He said it doesn't look good. I might not feel that much pain cause I still am experiencing numbness in my back and chest. I also still have the pain in my left arm pit, that seems to keep me up at night. Jack and I went home with my parents for about 5 days. It was a nice break. I will see Dr. A tomorrow at 2 and let everyone know the results.

Same Treatments for Now

2009-01-08T16:31:00.003-06:00

I had a chemo treatment today. My levels were all good. I go back next Thursday.
I feel pretty good right now. I'm in bed with a heated blanket, cause it's so cold. I don't have to worry about dinner because my awesome neighbors and friends bring my family and I dinner on Thursdays. The meals are always different, and very good. Oh, and let me not forget, I am in bed with Jack and 3 of his toys/books, Phoenix and Betty (two large dogs-labs) and Bella the cat. My niece Colleen had her port removed and she is doing great, clean bill of health.
Here's 2 people I talked to today. 1- she graduated and is done with chemo 1- this guy told me in March he was diagnosed with liver, colon, and brain cancer. He went to radiation and chemo. He had surgery with most removed. Nov. he was cleared, no signs. He went 1 month later for a cat-scan, its back. 1 month!!! He was devastated.
He was also very upset that the meds hes on is making him breakout like a teenager.

JAN.3 2009 WOW ITS WHAT, THE 5TH?

2009-01-05T18:04:00.003-06:00

HAPPY NEW YEAR!!!!!
EVERYDAY IS DIFFERENT FOR ME. I MAY WAKE UP WITH SO MUCH ENERGY AND BEFORE I KNOW IT I'M EXHAUSTED. I USUALLY DO TAKE A NAP(WHICH IS SO NEW TO ME) OR GO TO BED AT 8:00. I AM PROUD OF MYSELF THOUGH, I STAYED UP TILL 1:00 AM ON NEW YEARS EVE. IT HELPED THAT I WAS WITH SOME GREAT GREAT FRIENDS AT SUNDANCE. EVEN THOUGH I CAN'T DANCE ANYMORE WE HAD AWESOME CONVERSATION. THE NIGHT FLEW BY. I'M STILL SURPRISED HOW SORE I STILL AM, BUT ITS NOT EXCRUCIATING. THE SHOT DID CAUSE SOME BONE ACHING AND CHEST PAIN BUT ONLY A FEW DAYS. I GO BACK TO CHEMO ON THURSDAY THIS WEEK AND I AM FIGURING I'LL NEED A SHOT BECAUSE I'M FIGURING MY LEVELS TO BE LOW. I PROMISE TO KEEP YOU MORE UP TO DATE THEN I HAVE, SORRY.

Dec. 15, 08

2008-12-15T10:57:00.002-06:00

Wow, I can't believe how long it's been since I've written. Nothing new. I still go to Chemo two weeks then two weeks off. I have chemo on Thursday then I will be off over the holidays, you would think I planned that.I still have pain in my left arm and side from the lymph nodes being removed. I get off balance a little, never fallen though. I also don't hear well and mess up with my words when talking, that's nothing new. I talk to anyone who wants too during chemo, people can be so friendly. I met a man who starting talking to me at Home Depot. I wore a hat and he noticed I had no hair. Turns out he just lost his wife to cancer, I think he needed someone to talk to. He apologized for telling me news he felt was none of my business but I actually enjoyed talking to him. Alex turned 21 on Friday, oh my God, 21. He looks pretty good, getting big, facial hair coming in, interesting to think Alex will be shaving.
I want to thank my Lakemoor friends for the wonderful dinners they have been sending to me every Thursday. They are so good and with having chemo on Thursday its been great knowing I don't have to cook. I also want to thank my friends Alice and Margaret for the fresh flowers they send me every month. Every time I look at them I know even though you live out east, were close. I have awesome family who always make sure I'm ok and watch over Jack to give me a break. I have wonderful friends who not only drive me to chemo but hang for 3 hours so I'm not alone.Thanks to Deb who takes Jack to her home every week and plays with him. I enjoy that time to myself. Also, all the cards, letters, and prayers. I could keep going, I have so much to be thankful for. I wish everyone a wonderful, happy and healthy Christmas. I'll keep in touch. Cath

11-23-08

2008-11-23T09:20:00.003-06:00

I had Chemo on Thursday. My levels were OK but my RBC was really low, so instead of giving me a shot of Nuprigin and everyday go in to check it, they gave me a good dose that will last 3 weeks ($ 4000.00 shot). Unfortunately, it affects my bones and chest. I feel so exhausted and can't get out of bed because I have bricks on my chest. On Friday I spent the day in bed. Jack played really nice, he's getting into the action heroes. The Doctor told me he took my case to a seminar and I had more cancer then was originally thought. He still believes they got it all from the breast and lymph nodes. I don't have an appetite and my taste buds are messed up. I don't even have a craving for chocolate, what's that all about. I do enjoy a Wendy's Frosty, feels good on the throat. I'm looking forward to Thanksgiving, going to my brother John's.
I thank God everyday for giving me another day and I pray that he continues to give me the patience and strength to deal with the lows as graciously as possible. I have never waivered on why me. As the saying goes, it is what it is. I hope everyone has a wonderful Thanksgiving and remember to talk to God, he's always there for you and loves to listen.

Low Cell Count

2008-11-08T15:29:00.002-06:00

Last Thursday I had Chemo and my cell count and iron was real low so I had to go back on Tues to have them checked. It was very low almost none, so they gave me a shot. The shot doesn't hurt but the side effects hurt. The shot affects the bones because it gets in the marrow. I have a lower back ache, leg aches and it makes me feel like I'm gonna have a heart attach. All symptom's nothing to worry about. Well my counts were low on Tues., Wed., Thurs., and Fri. Needless to say it was a long week but the fact that I feel something from the treatment makes me feel like eventually it will kick it and my counts will rise. Next week if my count has gone up I will continue chemo. My Surgeon said my operation site looks good but said I need therapy to work on using my arm. I have been working on therapy myself, I don't have time to go somewhere else. Its rough but its working. I've been running into a lot of people who have have/had Cancer. Those who know me, know I'm not afraid to talk to strangers. I especially feel those who have/did have cancer want to talk.
They like to share and I find that therapeutic.

This one gets me every time...

2008-10-28T12:28:00.000-05:00

Lucky Dog....

Anyone who has pets will really like this. You'll like it even if you don't and you may even decide you need one!

Mary and her husband Jim had a dog named 'Lucky.' Lucky was a real character. Whenever Mary and Jim had company come for a weekend visit they would warn their friends to not leave their luggage open because Lucky would help himself to whatever struck his fancy. Inevitably, someone would forget and something would come up missing.

Mary or Jim would go to Lucky's toy box in the basement and there the treasure would be, amid all of Lucky's other favorite ! toys. Lucky always stashed his finds in his toy box and he was very particular that his toys stay in the box.

It happened that Mary found out she had breast cancer. Something told her she was going to die of this disease....in fact , she was just sure it was fatal.

She scheduled the double mastectomy, fear riding her shoulders. The night before she was to go to the hospital she cuddled with Lucky. A thought struck her...what would happen to Lucky? Although the three-year-old dog liked Jim, he was Mary's dog through and through. If I die, Lucky will be abandoned, Mary thought. He won't understand that I didn't want to leave him! The t hought made her sadder than thinking of her own death.

The double mastectomy was harder on Mary than her doctors had anticipated and Mary was hospitalized for over two weeks. Jim took Lucky for his evening walk faithfully, but the little dog just drooped, whining and miserable.

Finally the day came for Mary to leave the hospital. When she arrived home, Mary was so exhausted she couldn't even make it up the steps to her bedroom. Jim made his wife comfortable on the couch and left her to nap. Lucky stood watching Mary but he didn't come to her when she called. It made Mary sad but sleep soon overcame her and she dozed.

When Mary woke for a second she couldn't understand what! was wrong. She couldn't move her head and her body f elt heavy and hot. But panic soon gave way to laughter when Mary realized the problem. She was covered, literally blanketed, with every treasure Lucky owned! While she had slept, the sorrowing dog had made trip after trip to the basement bringing his beloved mistress all his favorite things in life. He had covered her with his love.

Mary forgot about dying. Instead she and Lucky began living again, walking further and further together every day. It's been 12 years now and Mary is still cancer-free. Lucky? He still steals treasures and stashes them in his toy box but Mary remains his greatest treasure.

Remember....live every day to the fullest. Each minute is a blessing from God. And never forget....the people who make a differe nce in our lives are not the ones with the most! credentials, the most money, or the most awards .They are the ones that care for us.

If you see someone without a smile today give them one of yours! Live simply. Love seriously. Care deeply. Speak kindly. Leave the rest to God

A small request: All you are asked to do is keep this circulating.

Dear God, I pray for the cure of cancer. Amen

All you are asked to do is keep this circulating Even if it's to one more person.
In memory of anyone you know that has been struck down by cancer or is still fighting their battle.

10-29-08

2008-10-28T10:25:00.002-05:00

I am receiving Chemo again. I had a treatment last Thursday and it really wiped me out this past weekend. I still have quite a bit of pain in my arm pit where they removed the nodes. The hardest part is sleeping. I also have no appetite at this time. I go back and forth with the appetite unfortunately when I do not have an appetite I am not losing any weight. Everyone said its good I have a cushion when I don't want to eat, I have a cushion, I have two cushions, actually at this point I'm working on a blanket. On the 30th I will see my surgeon for a check up and on Thursday I have Chemo. I'll keep you posted. After the last Drs visit I am pretty positive I will beat this, I'm just getting tired of the word Cancer and being tired. Can you believe its been only 6 months.

GREAT NEWS!!!

2008-10-15T16:38:00.002-05:00

The results of the MRI's were better than we ever could have hoped for!

The lesion on Cathy's spine has been reduced by more than half of it's original size. The lesions in Cathy's cerebellum have shrunk to the point where if a doctor was looking at the current MRI's, they wouldn't even detect a problem. The only way to know there were cancerous lesions in the first place is due to the early MRI's!

All around fantastic news. Cathy and the whole family are in great spirits! She'll start up chemo again next week.

Thank you all for the prayers, kind words, concerns, etc...they are most definitely working!

Surgery

2008-10-14T11:32:00.003-05:00

I received the pathology report from the breast and 11 lymp nodes they removed. The breast was full of the disease as was the 11 lymp nodes. I feel pretty good other then where they removed the nodes under my left arm. I am pretty sore and have trouble getting comfortable but I manage. Tomorrow I will get the results of the MRI's I had on my spine and brain Fri. and Sun. They will restart the Chemo in 7 days. I will keep you posted. (sorry my computer was on the brink for about 2 weeks but were back)

Surgery=SUCCESS

2008-10-06T16:53:00.002-05:00

Cathy is already out of surgery, and everything went very well. They removed a few lymph nodes and sent them to pathology to see how the chemo is working. Everything else looked just fine.

Thanks all for your thoughts and prayers! Hopefully the pathology tests and MRIs will bring good news in the days to come!

Cathy just went into surgery

2008-10-06T14:58:00.003-05:00

I just called my dad and Cathy just went into surgery about 15 minutes ago. Nothing wrong on her end. The surgeon assigned to her surgery had to perform another one before Cathy's.

As soon as I hear from my dad after the surgery, I'll be sure to post. Just wanted to update those of you wondering how it's going today.

Surgery Tomorrow (Monday, October 6th)

2008-10-05T19:12:00.002-05:00

Cathy is going in for her masectomy tomorrow (Monday, October 6th) around 11am. The surgery will start around noon and should last a few hours. She'll be in the hospital for recovery from 1-3 days, depending on how the surgery goes and how her body is reacting. She will not be having any reconstruction at this time, but she told the doctors, "If you don't like something you see in there, TAKE IT OUT!" She's stronger than ever, a real inspiration to me and all of us.

Please keep her in your thoughts and prayer even more so tomorrow. And thank you as always for your concern.

update

2008-09-19T21:58:00.003-05:00

I saw the Dr. today. I have a uti infection which my body is trying to fight and that's part why my levels don't exist. They see other things going on so they put me on an antibiotic so my body can resume fighting the cancer. My levels did go up slightly so I did get another shot of some kind of cell booster. My WBC went up 1.0, and I have 1 baby white cell, go baby. I do not have to return till after the surgery. I also have Mri's scheduled at Evanston for the brain and spine on Oct. 11th and 12th, it shouldn't be affected by the surgery because its a different part of my body. (As long as they don't use staples, I'm OK, or I could stick to the machine)

Update 9-18-08

2008-09-18T21:28:00.002-05:00

Cathy asked me to update the Blog because she had a 4 year old with an ear infection last night :(

Cathy has been feeling extra fatigued, winded and breathless lately. She went to her doctor and they took a White Blood Cell count. A normal count is between 7.0 and 10.0. Cathy's was .6. So they gave her a shot that's supposed to boost that number, but it only went up to .8. She's going in again tomorrow (Friday) to receive another shot. They will take her count again on Monday. If it is still really low, she will be admitted to the hospital to receive a blood transfusion and whatever other tricks they have for boosting white blood cells. The doctors are somewhat concerned, because usually the counts go up after the shot. They think she may have an infection somewhere, but they are not sure.

However, Cathy's spirits are high, as always. I don't know how she does it. She actually said a stay in the hospital doesn't sound too bad right now (no 4-year old, 2 dogs, or Mark Baker to deal with :) ) She's back on a steroid to help fight the inflammation in her brain which was giving her a lot of headaches.

Her mastectomy is still scheduled for October 6th, but if her white blood cell counts don't go up, it may push that date back.

I'll actually be in Illinois the next two weekends! I'm really looking forward to seeing my family again and helping out however I can. Thank you all for your continued support and prayers!

Pictures

2008-09-18T17:23:00.010-05:00

I discovered how to enclose pictures. So bare with me.
First is my Mom and Dad who have been awesome in caring for me.
Second is Shaun and I. Third is after my diagnose and my first haircut with Jack. Fourth is about 1 month ago, Shaun and Jack, my youngest and oldest, at the zoo.

An Inspiration To Me

2008-09-18T17:23:00.003-05:00

This blog is actually going to be dedicated to someone I love, care for, and admire so much. My godchild and niece, Colleen Stanko. As many of you know she was diagnosed with, and had removed within 3 days of the diagnoses, an Ovarian Tumor that weighed in at over 12 Lbs. Yes, That's right 12 lbs. She also lost an ovary. Oh, did I mention shes only 16. Colleen has always been slender so we were amazed something so big could have gone undetected. Within days of being diagnosed she underwent surgery. This tumor was the size of a football, no kidding! Being rare, it's even rarer to be malignant. Her's was cancer. The Doctors believe they have all the cancer but as a precaution she is receiving Chemo. She lost her hair this week and barely batted an eye.I knew that as I had Colleen. I thouhgt I was ready. But it's still a shock to see youself bald. The first few days you can't stop rubbing your scalp. For thew next month I kept reaching for and then realizing "I don't need cream rinse or a towel on my head to hold my hair". Honestly, that took me awhile to remember. Colleen wasn't fazed. Her mindset, which is now mine, "IT IS WHAT IT IS". How true is that. We have no say. We are in God's hands first, Doctor's second. Colleen has been unbelivable since her diagnosis. She has never said "Why Me"? She is so young yet has never complained. She is amazing. As all of you have for me, pray to God that he continue to give Colleen the physical and emotional strength she has shown thus far in her battle to overcome this illness. I think of her constantly and I am amazed by her maturity and bravery. If anyone wants to e-mail me directly bakerc04@comcast.net in regards to Colleen, feel free to do so.
The picture is Colleen sitting between Nick and Shaun.

9-11-08

2008-09-11T13:36:00.002-05:00

I had my last chemo treatment yesterday, till after my surgery. The chemicals are definitely reeling in my body and have accumulated over the last 4(8) treatments. When I forget things the nurses call it chemo brain, I like the fact its not my fault and its just my brain, hahaha. I will not receive any more chemicals till after the surgery and they will start with oral chemo. The oral does upset my stomach, but oh well. My counts are really low so I do have blood level check next week. I am not just tired, I'm breathless. I also only sleep one -two hours a night. I keep thinking maybe there is something I should be doing but I can't get out of bed. I am suppose to just take it easy but its hard to just sit when I have a house to care for and a four year old. Listen to me, that really is not bad, it could be so worse. Uncle Bob, if you read this, thank you so much for the Holy Water. I can't tell you what it means to me.

Sept. 3

2008-09-03T19:14:00.002-05:00

Today I was informed I would be having a mastectomy on my left breast with removal of lump nodes with no reconstruction at this time. The Doctor wants to get right back to the treatments. She feels my body will be working harder to heal if I do further surgery at this time. The treatments following will also flow to the brain and they want that part of the treatment not to be postponed or altered at this critical state. I will have the surgery on Oct. 6th and spend 1-3 days in the hospital depending how my body responds. I get anxious thinking I may be getting some of the poison out of my body, can't wait. The brain is worse but that's next.

Sept. 2

2008-09-02T16:24:00.002-05:00

Well, as of today we are holding off the surgery till after the next round of Chemo treatments, which starts tomorrow. That pretty much means to me the beginning of Oct. I am getting a little anxious with this poison in my body, I wish they would give me more infomation. I went on line a little today and invaded Brain Cancer sites, I did get discouraged a bit but I feel so good other then the loss of sleep and fatigue that its hard to believe I really am sick. I see the Oncologist tomorrow morning and will keep you posted what he has to say. Don't hold your breath.

August 27, 2008

2008-08-25T11:42:00.003-05:00

Yesterday I went to the oncologist to check my levels. I was extremely low on my white blood cells, good levels for me would be between 7.9 and 10.5. I was 1.2. They gave me a shot (of what I don't know)to help with it and pain medicine to help with the bone pain it could cause that night. I went today and my count was up to 2.9 but my platelets were so low they put me on Cumidin to prevent blood clots in my port. I tell ya to prevent one thing you need to have something else. My back pain only lasted the morning, thank you lord. I also saw the surgeon for the mastectomy and she needs me to be off the Chemo for three weeks, have the surgery, two days in hospital, and then another three weeks off the Chemo. This is without the reconstructive surgery. My oncologist informed me, the Chemo I am on should not interfere with the healing and I can take after the surgery(the oral, which makes me nausea but I'll just have to deal with it and be grateful I am back on the treatments, which is awesome). The reconstructive surgery is suppose to be very painful and I'm not sure if I should get it done at the same time and bite the bullet or wait and go at a later date. Any suggestions or comments would be grateful. So as of today, I am waiting to hear from the surgeon on when? I have chemo next Wed, and the following week, so if they don't schedule me next week it will be at least three weeks. Please any input on the surgery or reconstructive surgery, I'd be interested. Thank you everyone for everything. I have such an awesome family and friends. Also....my Mom has bugging me to post myself with my blond wig. It's my fun wig, its Meg Ryan in back and sides, and Rod Stewart on top.

8-15-08

2008-08-15T21:43:00.002-05:00

Cathy had surgery this morning to have a direct port called an intraventricular fluid access device put in. They had trouble accessing a vein yesterday to administer her chemo, so they decided to do this surgery to help. Now they won't have to prick and poke her veins as much. This device is implanted under her skin and has direct access to her heart. Now, whenever they administer chemo or if in the future she needs blood drawn/given, it will go through this device. It was outpatient surgery, something that a lot of cancer patients have done, and she's feeling good. Cathy, Jack, and my dad are all heading up to Wisconsin to go camping for the weekend.

Aug. 8, 2008

2008-08-08T15:32:00.002-05:00

I've been getting a little slack that I don't post often enough. Sorry. Some days just blend into others and I figure no one cares about that. I had Chemo yesterday. They gave me my Cyclophosphamide intravenously, it took about 1hour but I don't care I was having trouble remembering to take the pills 3 x's daily. Someone also asked what other meds I'm on. I have Methotrxate and 5-fluorouracil on Fridays (that adds about 2-1/2 hours on my visits.) My poor cousin Carrie took me to my last visit and we were there 4 hours. As of yesterday he put me on Dexamethasone 2-4 times a day for swelling in my brain(that's a pill.) I've been experiencing pain from my neck down my arm. I also get this headache in my eye. Its really weird. I did break down and ask what my prognosis looked like and she said we have lots of options. I don't know if all of you know but I did ask my Dr.when I was only 30 days into treatment and he said if the treatments don't work 10 months. That was a downer. My Oncologist was mad, claims he doesn't study cancer hes a GP, shouldn't have told me that. Am I rambling????? Remember, the father is never closer to the Vine than when he is pruning it. Thanks again for all the prayers, As I am growing tired I so do depend on them.

Aug.3 08

2008-08-03T19:49:00.003-05:00

There is really nothing new. I am on the same treatments. I do seem to get a burst of energy one day and spend the next exausted. I will be getting all my treatments through IV's as the pills were making me too nauscious. I had a headache that lasted 3 days so I was put on another steriod and had a MRI. The MRI didn't show anything different. I have to call the surgeon to check on the breast and what I need to decide regarding a masectomy. I haven't been as witty as I usually am but I really am still holding positive. I posted a picture of me wearing a favorite wig. Its red with brown and blond highlights. There also is a picture of me with my cousins, which I consider my sisters. I don't know what I would do without them./div>

Continuing the Chemo

2008-07-16T09:04:00.003-05:00

Sorry I haven't kept the blog up to date. I had another triple dose of chemo on Friday (7-10-08) and its kinda knocked me out a little. I will go to the clinic for triple does of Chemo on Fridays and every day in between I'll just take Chemo at home 3x a day. This will be for two weeks then off one week. The Chemo has made me talk a little goofy, like, saying what I don't mean but what I happen to be looking at. I also don't hear or see quite as good. (nothing to be concerned about) I also am getting sick on this dose. No pain though and other then the minor symthoms I feel good. Oh, and they took my driving privledges away again. Oh well, I was getting used to being chauffered anyway, maybe I should start sitting in the back seat. I don't think sooo. I do wear the wig when I go out somewhere nice but usually just wear my GI Jane hat. I'll get some pictures of me with the wig on the next blog I need Tara's help.
Just something I wish to share.
I was on the couch for 3 days with a pain behind my right eye among other pains in the stomach, neck etc... I do get migraines so I just chalked this up to a migraine.
My Mom sat next to me and gave me my Grandmas rosary. I haven't prayed the rosary in years so she gave me the book. While I was just laying there I decide to do the rosary. When I was done I got up, went to get a drink of water, went back to the couch and guess what the pain was gone. To this day it has not come back. I prayed that the pain in my eye would go away and I would deal with the other pains and it was gone. Just something I wanted to share. The power of prayer.
Again, I can't that you all enough for the meals, flowers, thoughts and prayers.
Love ya all- Cath

New MRI results

2008-07-08T17:29:00.003-05:00

GOOD NEWS! Cathy received the results of the latest bunch of MRI's that were done and...

1) No new spots were revealed
2) The larger spots seemed to be a bit smaller
3) The smaller spots weren't bigger

I'm sure she'll be posting soon, but good news needs to be shared IMMEDIATELY.

I hope you all had a happy and safe 4th of July!

UPDATE 6-24-07

2008-06-24T10:45:00.003-05:00

Well First, I know everyone wants to know how the benefit went. Unfortunately, it rained at the beginning and I think it scared alot of riders, also a couple bike clubs cancelled. I was at the beginning, registration, and wouldn't be able to stop talking about how generous everyone was that did show. I missed most of the show at the end. The Children from RocVale showed and loved the band "Easy Louise". I heard they were dancing and having a ball. Of course, Alex doesn't dance, he would rather sit and hug the pretty girls. Overall, the profit for bikes came to around $ 4500.00
not counting the 34 bike helmets that were donated. I can't thank everyone that helped me enough.
Second, I have 4 more days of Chemo left. Then I have 14 days off. I will still have the chemicals in my system even though I won't be given them. The last few days I have been feeling not quite myself, but ok none the less. This Friday I get blood work done to check my counts. Next Monday and Wed. I go to Evanston to see Dr. Nina and have 4 MRI's done. On the 8th I get the results. Thanks again for the wonderful meals and all the prayers. Cath

STARTING CHEMO

2008-06-15T21:04:00.003-05:00

Well... On Friday I started Chemo. At the Doctor's, I received 2 IVs of Chemo Medicine and 1 of medicine for side effects. At home I take 3 tablets of Chemo a day for 14 days. I will not go back to the clinic for more IV Chemo till this Friday. After the 14 days I will take 14 days off, then repeat. The Dr. is keeping me on the prednisone and Keppra (seizure med), along with my synthroid and other meds. I had to start writing times and check marks as I was getting confused. I do have my head shaved which is really comfortable. I have not worn my wig yet as the radiation is still causing my head to be sore some. I have an army green hat I wear and Mark calls me Beetle Bailey if not Chemo sabe.... I cut Jacks hair today and he asked that I don't cut it as short as mine, haha. He prays every night that Mommy's headaches go away. My Cousins took him for two days and he had a ball. Never asking for me once, a little sad but at the same time shows how much fun he had. By the end of the month I should have another MRI to see where we stand on the chemo and radiation, also more info on the mastectomy. Oh and good news, I do have some feeling back in the numbness on my right side. (feels like pins and needles)
Other then being tired, I feel good. Thanks again for your good thoughts and prayers. Cath

RESULTS

2008-06-11T07:34:00.004-05:00

I got back the results from the PET scan, all good, no other cancer other than what they knew about. (breast, spine, brain) I will begin Chemo on Friday. I will start on 3 different chemo meds and another to help with side effects from the medication. They don't think they will need a port as I have very good veins. The only bad thing is they predict most patients to get sick around 7-10 days after 1st dose, 9 days after 1st dose is my benefit rally for Alex. I am determined not to get sick.
I also got my head shaved, oh boy. I can't stop rubbing my hands over my head. I wear an army green Tony Hawk hat and feel like GI Jane. I feel so open, I think I use to hide behind my hair. I always wore it long and with it around my face. Now all you see is face a fat round one because of the meds. I have the pudgy cheeks every mother wants to pinch.
Thanks again for all the prayers.
Cathy

UPDATE BUT NOT REALLY.....

2008-06-07T08:05:00.003-05:00

I don't even know where to begin... I am just in shock over all the concern and support that I have received. I have been sent so many well wishes that I feel like the luckiest person on Earth, other than the illness of course, haha. Well, I have begun to loose my hair, FAST, and yes I do have an awesome wig. I actually also have a real cool hat I may just wear and save the wig for my fun nights out. Wait fun nights out, whats that??? I have been busy putting the ending touches on the Bikers for Bikes benefit for June 22. I am determined to make it a success. Alex misses me and has asked for me alot, even refusing to participate in the Special Olympics because I didn't show... I haven't seen him since I was diagnosed. I finished the Radiation treatments and had a pet scan Thursday pm, no results yet. On Monday, they want to discuss the chemo. treatments. My Oncologist wants to talk about the treatments with the radiolgist and Dr. Nina at Evanston before making a descision. My head still baffles him, as many others, haha. Over all I feel good, other then the headaches and fatigue. The fatigue is worse, cause I have so much to do, I don't like sitting. I am a woman who hates to feel like something else is controling her. I want to thank my family and friends, old and new,for the amazing support they have given me, it means so much! Cath

Please take time to do this...

2008-05-30T11:05:00.002-05:00

I received this email today, it takes literally 1 minute, if that, to do. Thought it would be a good thing to post on this blog.

The Breast Cancer site is having trouble getting enough people to click on their site daily to meet their quota of donating at least one free mammogram a day to an underprivileged woman. It takes less than a minute to go to their site and click on 'donating a mammogram' for free (pink window in the middle).

This doesn't cost you a thing. Their corporate sponsors/advertisers use the number of daily visits to donate mammogram in exchange for advertising.

Here's the web site! Pass it along to people you know.

http://www.thebreastcancersite.com/

PET scan next Thursday

2008-05-28T18:15:00.003-05:00

Cathy will be going in for a PET scan next Thursday (originally scheduled for today, but was pushed back). This should reveal more information about the origins of her cancer and help further a treatment plan. She has been going diligently to her radiation treatments and has been feeling pretty good. She'll feel a little sick and worn out after the treatments, but her spirits are still great.

Hope you all had a great Memorial Day and summer will hopefully be right around the corner!

Cathy's new haircut

2008-05-24T15:12:00.006-05:00

Cathy asked that I post some pics of her with long hair, and now her cute bob cut! This is in preparation for when she loses her hair due to the radiation. Due to the fact they are applying radiation directly to her head for the spots on her brain as well as going down through the back of her head to her spinal cord (to avoid her throat) for the spot on her spine, she will lose her hair.

But I think the new 'do looks fantastic! And if she does lose her hair, Cathy's gonna be one heck of a bald knock-out! A big thanks to Tina, a bible study friend of Cathy's, who cut her hair (and thank you to the others who offered as well).

Follow-up to Radiation: Day 1

2008-05-22T07:27:00.002-05:00

Sue Allen had a few follow-up questions that I'm very sorry I've never covered in this blog! Figured that all of you are wondering the same things, so I'd respond here. And please, feel free to email me or ask questions on this blog, Cathy and I both come on here every day.

-Cathy will be going for radiation treatments Monday-Friday for a month. She will have weekends off and Memorial Day off. Her treatments are taking place at Good Shepard Hospital in Barrington.

-Cathy's mom and dad are staying with Cathy semi-permanently now. They might go back on weekend's (they are going home this weekend to paint their place, and it's Memorial Day, so Cathy has 3 days off of treatment). Cathy's dad will probably go back and forth from IL to WI a little more often just to keep up with their place. Luckily they have a spare bedroom and they have come to stay very often in the past, so this is pretty much normal.

-My dad has been taking Cathy to most of her appointments, but now that they have answers and treatments have been set up, Cathy's mom and dad will be taking her to radiation. Now it's just a half hour appointment every day Monday-Friday.

-Little Jack has been at home for the most part, being watched by Cathy's mom and dad or his brothers. Our neighbor across the street Michelle has been really great about having him come over at times as well (Jack was there when Cathy was first admitted to the hospital a few weeks ago)

-Both Nick and Matt live at home still, so they've been a huge help and will continue to be. Nick actually told me yesterday he's going to quit his 2nd job at TJMaxx to be able to help more. AND he's trying to quit smoking! I'm sure Cathy's delighted about that.

We are so lucky to have such wonderful family and friends. My dad and I were just talking this morning, and he wanted me to reiterate how much he appreciates everything everyone is doing. From the thoughts and prayers, to the food, to the visits/calls/emails/posts...thank you SO much. It really does mean to the world to us.

Radiation: Day 1

2008-05-21T17:37:00.002-05:00

Cathy had her first day of radiation. Her appointment was at 7:45am, and she didn't leave until the early afternoon. They had to fit her for something she wears on her head to concentrate the radiation at the right areas of her brain. That was a long and uncomfortable process (a lot of heat and pressure was applied), but of course, Cathy was strong and made it through. Then she had to have X-Rays taken to pinpoint the specific areas to concentrate. AND THEN she was finally ready to receive radiation. In addition to concentrating on the lesions on her brain, she's also receiving radiation on the spot on her spine. They are not focusing on the breast cancer just yet, as they are probably eventually going to perform a mastectomy once radiation and chemotherapy has run it's course.

This process will continue for an entire month. She will have weekends off, as well as Memorial Day. The doctors said she might lose some of her hair and experience nausea and fatigue. She may also develop a lump in her throat as a reaction to the radiation, so they are holding off on chemotherapy for the time being because it would add to that lump as well and affect Cathy's breathing.

Later this week or early next week, Cathy is also going to have a PET scan (Positron Emission Tomography). For more info on this, please follow this link: http://www.petscaninfo.com/zportal/portals/pat/cancer
To sum it up, this scan lights up any spots of cancer in the entire body so the doctors can pinpoint the source of cancer and treat that area aggressively.

Cathy's again in good spirits despite it all. She does have a bit of a headache today, but she made sure to reiterate that I needed to post to update everyone on what's going on.

The latest...

2008-05-19T21:23:00.002-05:00

Cathy visited her general practioner today. She was told she no longer is allowed to drive due to the potential for seizures. She's pretty bummed about that obviously, but made her last drive for a while memorable. Turns out she was pulled over for speeding on the way home! That cop shouldn't have messed with her, because she definitely gave him a piece of her mind. Despite the 'tude, the cop let her go with a warning. Just a small glimpse into the fight Cathy has in her! (Cathy, I hope you don't mind I shared that story...it was just so fitting and hilarious!)

Cathy will go and see her oncologist tomorrow to set up treatments, with the first probably starting on Wednesday. They'll definitely be doing radiation and probably some chemotherapy as well. Doctors continue to be hopeful about this aggressive form of cancer also reacting to treatments aggressively.

Everyone's really starting to pitch in at home. Cathy had an awesome weekend with her oldest son Shaun in Chicago. Really helped her get her mind off of things for a bit. Nick and Matt have been doing a lot of the household chores. Cathy said she could really get used to that!

Spirits remain high and that's in part thanks to all of you sending your thoughts and prayers.

THANKS TO ALL

2008-05-16T13:48:00.002-05:00

I want to thank everyone for being so supporting. All this news about Cancer came as such a shock to my family and I that I don't think its really set in yet. It is aggressive but I heard that may be easier to treat, I hope so. On Tuesday, I meet with the Oncologist about setting up my treatments. After the treatments are successful, I will get a masectomy and possible removel of the lesion in my spine. I am strong in my faith and know God is with me everyday. Whether I'm having a good day or bad day, my faith will never lessen. Again, thank you all for your prayers.

Tara, thank you so much for putting this site together. I've heard alot of people have used it for your updates, good idea. P.S. I miss you.

Love to you all, Cathy

Consultation Results

2008-05-15T15:18:00.002-05:00

I was taught a valuable lesson at a young age: deliver news/criticism like a sandwich. Say something good, then the bad, and follow that up with the good. I'm applying it to what Cathy learned today...

Good news: M.S. was ruled out today.

Bad news: The lesions on Cathy's brain and spine are metastatic cancer. She will have consultations with neurosurgeons to decide how to proceed on the thumb-print sized lesion on her spine, and that will affect further treatment (removal or radiation/chemo). That lesion was causing the numbness in her torso. The lesions on her brain cannot be removed, so those will be treated with radiation and/or chemotherapy. Surgery cannot be performed on the breast cancer until the radiation and/or chemotherapy runs it's course (surgery stops all other treatments). So right now, it looks like radiation and/or chemotherapy will be the way to go.

Good news: The doctor is optimistic about how Cathy's body will respond to treatments. Due to the quick-moving nature of the cancer, often times that type of cancer will also respond quickly to treatment. Plus, the doctors have not dragged their feet from day one, so the illness was caught quickly. And there are all sorts of treatments out there to battle this disease.

Thank you all for your continued thoughts and prayers. Please continue to do what you're doing...I'm sure it's a major reason there was good news today. Let's focus on the good.

Consultation tomorrow (Thursday, May 15th)

2008-05-14T11:48:00.002-05:00

Cathy is going to have a consultation tomorrow (Thursday, May 15th) at 1pm at Evanston hospital. That should reveal the results of the tests that were conducted over the weekend. Then, finally and hopefully we will have a course of action. Please, now more than ever, keep Cathy in your prayers and hope for an optimistic prognosis.

Tests today and tomorrow

2008-05-09T12:15:00.002-05:00

Cathy is having a 3 hour MRI done today at Northwestern and another lengthy MRI done tomorrow to look closer at the spine and brain lesions. I hope they can play some good tunes for Cathy while she's in the MRI tube, but nothing too good otherwise she won't be able to keep still!

We should hopefully have some results Monday or Tuesday. Thank you again for all of your support, you have no idea how much it means to Cathy and the rest of us.

Here's what we know...

2008-05-07T21:37:00.000-05:00

Cathy does have invasive and metastatic breast cancer.

Some preliminary tests have been done on the lesions Cathy has on her brain and spine. More tests are going to be performed Friday, May 9th and Saturday, May 10th. We should have some results on Monday, May 12th (at least they give her Mother's Day off!).

The results of these tests will determine where we go from here. The treatment program will depend greatly on the results of these tests. Pretty much, it's a hurry up and wait situation right now.

Luckily, Cathy is no longer admitted in the hospital and was able to go home. She's in outstanding spirits all things considered, and was even vacuuming when I called her earlier today!

Please continue to keep her in your thoughts and prayers. And thank you all for being there.